Experiences of caregivers of autistic children in urban South India: Insights from caregivers and providers

Pu, Michelle F. and Balasubramaniam, Bhuvaneswari (2026) Experiences of caregivers of autistic children in urban South India: Insights from caregivers and providers. Research in Autism, 136. p. 202950. ISSN 30506565

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Abstract

Caregivers of autistic children in resource-limited countries such as India face multifaceted challenges. Research on culturally specific experiences of caregivers navigating their child's autism diagnosis is limited and hinders effective partnership and alliance with caregivers. This study explored the experiences of caregivers of autistic children in Bengaluru, South India. In-depth, semi-structured interviews were conducted with twenty caregivers of autistic children and eight providers, including educators and early-intervention providers. Transcripts were analyzed using inductive thematic analysis. Five themes describe caregivers’ complex journeys of receiving, navigating, and coping with their child’s autism diagnosis. Parental and healthcare provider awareness regarding autism is limited, leading to widespread normalization of developmental delays. Second, caregivers experience a high burden of care and prominent stigma regarding autism, which affect their interpersonal, psychological, and financial well-being. Third, beliefs on the etiology of autism vary and inform how caregivers approach solutions and therapies. Finally, caregivers use various coping strategies to navigate stigma and accept their child’s diagnosis. These findings highlight the need for culturally adapted interventions that support caregiver well-being and coping and empower caregivers as pivotal stakeholders in their child’s development.

Item Type:	Article
Authors:	Pu, Michelle F. and Balasubramaniam, Bhuvaneswari
Document Language:	Language English
Subjects:	Philosophy & psychology > Psycholgy Technology > Medicine & health > Promotion of health Technology > Medicine & health > Diseases
Divisions:	Azim Premji University - Bengaluru
Full Text Status:	None
URI:	http://publications.azimpremjiuniversity.edu.in/id/eprint/7654
Publisher URL:	https://doi.org/10.1016/j.reia.2026.202950

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